Consumer genetic technologies : ethical and legal considerations / edited by I. Glenn Cohen, Harvard Law School, Nita A. Farahany, Duke University School of Law, Henry T. Greely, Stanford Law School, Carmel Schachar, Harvard Law School.
For the average person, genetic testing has two very different faces. The rise of genetic testing is often promoted as the democratization of genetics by enabling individuals to gain insights into their unique makeup. At the same time, many have raised concerns that genetic testing and sequencing re...
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Full Text (via Cambridge) |
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| Other Authors: | , , , |
| Format: | eBook |
| Language: | No linguistic content |
| Published: |
Cambridge :
Cambridge University Press,
2021.
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| Subjects: |
| Summary: | For the average person, genetic testing has two very different faces. The rise of genetic testing is often promoted as the democratization of genetics by enabling individuals to gain insights into their unique makeup. At the same time, many have raised concerns that genetic testing and sequencing reveal intensely personal and private information. As these technologies become increasingly available as consumer products, the ethical, legal, and regulatory challenges presented by genomics are ever looming. Assembling multidisciplinary experts, this volume evaluates the different models used to deliver consumer genetics and considers a number of key questions: How should we mediate privacy and other ethical concerns around genetic databases? Does aggregating data from genetic testing turn people into products by commercializing their data? How might this data reduce or exacerbate existing healthcare disparities? Contributing authors also provide guidance on protecting consumer privacy and safety while promoting innovation. |
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| Physical Description: | 1 online resource (x, 291 pages) |
| ISBN: | 9781108874106 110887410X |
| DOI: | 10.1017/9781108874106 |
| Source of Description, Etc. Note: | Vendor-supplied metadata. |