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Consumer genetic technologies : ethical and legal considerations / edited by I. Glenn Cohen, Harvard Law School, Nita A. Farahany, Duke University School of Law, Henry T. Greely, Stanford Law School, Carmel Schachar, Harvard Law School.

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For the average person, genetic testing has two very different faces. The rise of genetic testing is often promoted as the democratization of genetics by enabling individuals to gain insights into their unique makeup. At the same time, many have raised concerns that genetic testing and sequencing re...

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Bibliographic Details
Online Access: Full Text (via Cambridge)
Other Authors: Cohen, I. Glenn (Editor), Farahany, Nita A. (Editor), Greely, Henry T. (Editor), Schachar, Carmel, 1985- (Editor)
Format: eBook
Language:No linguistic content
Published: Cambridge : Cambridge University Press, 2021.
Subjects:
Human chromosome abnormalities > Diagnosis > Law and legislation.
Data protection > Law and legislation.
Privacy, Right of.
Medical genetics > Law and legislation.
Human genetics > Law and legislation.
Human chromosome abnormalities > Diagnosis > Moral and ethical aspects.
Table of Contents:
  • Liability implications of direct-to-consumer genetic testing / Gary E. Marchant, Mark Barnes, Ellen W. Clayton, and Susan M. Wolf
  • Consuming genetics as a life insurance consumer / Anya E.R. Prince
  • In favor of an action for genetic conversion / Jessica L. Roberts
  • Direct-to-consumer genomics and personal health data / Jorge L. Contreras
  • Governance in the era of CRISPR and DIY-Bio regulatory guidance of human genome editing at the national and global levels / Scott J. Schweikart
  • Noninvasive prenatal genome sequencing ethical and policy post-birth implications / Vardit Ravitsky
  • The myth of "anonymous" gamete donation in the age of direct-to-consumer genetic testing / Seema Mohapatra
  • Improving commercial genetic data-sharing policy / Kayte Spector-Bagdady
  • Genetic paparazzi / Yaniv Heled and Liza Vertinsky
  • Programming our genomes, programming ourselves : the moral and regulatory challenge of regulating do-it-yourself gene editing / Barbara J. Evans
  • Governing nontraditional gene editing / Maxwell J. Mehlman and Ronald A. Conlon
  • Finding a regulatory balance for genetic biohacking / Patricia J. Zettler, Christi J. Guerrini, and Jacob S. Sherkow
  • Generational failures of law and ethics : rape, Mormon orthodoxy, and the revelatory power of ancestry DNA / Kif Augustine-Adams
  • Precision medicine and the resurgence of race in genomic medicine / Jonathan Kahn
  • Losing our minds? direct-to-consumer genetic testing and Alzheimer's disease / Emily Largent
  • Investigative genetic genealogy and the problem of familial forensic identification / Natalie Ram
  • An ethical framework for genetic counseling in the genomic era / Leila Jamal, Will Schupmann, and Benjamin E. Berkman
  • Physician-mediated elective whole genome sequencing tests : impacts on informed consent / Emily Qian, Magalie Leduc, Rebecca Hodges, Bryan Cosca, Ryan Durigan, Laurie McCright, Doug Flood, and Birgit Funke
  • Privacy best practices for direct-to-consumer genetic testing services : are industry efforts at self-regulation sufficient? / James W. Hazel
  • Regulatory and medical aspects of direct-to-consumer genetic testing / Catherine M. Sharkey, Xiaohan Wu, Michael F. Walsh, and Kenneth Offit.

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